Last night as I sunk into the darkness to sleep, I was tinkering with ideas for a project I am working towards in June that for me is about giving a voice to the chronic illness community, and then I felt called to listen to the first episode of my brave friend @rebeccaewebber’s podcast called “Exposing Isolation”. In those last moments before unconsciousness took me, I know I picked up my phone and rapidly typed out some words. What those were, I don’t know, that is until I just opened my Notes app:
April 29, 2019
We are the invisible Living behind closed doors Tucked away from society
Illness is our constant companion But how can so many be invisible?
We are not one not two not twenty nor one hundred
No We are in the MILLIONS
So why doesn’t anyone hear this cacophony of invisible voices?
I hear them They fill my mind they weigh on my heart They are thunderous in volume these voices of suffering and isolation and exhaustion
These voices call out for answers They ask “what is wrong with me?” But doctors have no answers
We are complex and varied and medical enigmas
We are the voices of the chronically ill
Hidden, flames kept low Yet we burn with desire and yearning for a life filled with less suffering and isolation
Are you listening? Can you detect the cries?
Hear us We need you.